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Thanks for dropping by. This website was setup a few years ago to offer support, advice, networking and information to anyone affected by Fibromyalgia. It was the result of my own experiences and frustrations, and the desire to ensure better information and support was available - especially to people in the local area (Thurrock and Basildon initially).
A local support group grew and developed, as the membership demographics changes a new group was formed with an excellent leadership team who have been able to put in far more time than I could. The group is doing great, and I'm really pleased with all that Helen and Maggie (and others) have done.
Since setting up the website and local support group I've been asked to take on several other roles also - notably being Chair of the Local Involvement Network, and also to take over as Chair of a rapidly-growing national charity. Everyone's time and energy is limited - especially those of us with Fibro, CFS and similar - and I have had to take stock of where my (often limited) energies go.
Sadly the world of Fibromyalgia Support seems to be full of internal battles, fights and politics. Whilst I've done my best to leave all this to one side and concentrate on the common goal of supporting individuals and raising awareness, this has become increasingly difficult. There are many wonderful individuals and organisations out there working tirelessly to raise awareness and support and encourage others, but there also seems to be an undercurrent of empire-building which is unhelpful and unhealthy.
I have therefore taken the difficult decision to cease development of this site. I'll continue to support individuals through my other roles, and to support and encourage others involved in providing support - whether it's a helpline, support group or just a listening ear - but will not be developing anything new.
I'll put all the resources we have developed, shared or recommended up onto here in the next few days, as well as details of local groups and national support organisations. I'm still very happy to chat with anyone affected by Fibromyalgia, especially parents, and will pass on helpful information where I can - feel free to call or email if you want to!
Pop back in a day or two for the links and downloads!
Steve
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