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May 2008

Common Symptoms - Cognitive dysfunction ('Fibro-Fog')

Submitted by admin on 8 May, 2008 - 10:08
  • symptoms
  • medical

Many people with fibromyalgia experience episodes of unclear thinking or cognitive dysfunction. They become forgetful, lose their train of thought, forget words or mix them up. This is what is popularly called “brain fog” or “fibro fog.” Fibro-fog is possibly one of the most common yet unrecognised symptoms of fibromyalgia, and can include:

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Membership Form available to download

Submitted by admin on 5 May, 2008 - 09:28
  • download
  • membership
  • news

We have completed our membership application and merchandise order form, and are posting these out to new and existing contacts.  The form is also available online to download and print.

Membership is £10 per year, or £5 for those on means-tested benefits who may not be able to afford the full membership fee, and also for carers and family members of existing members, who also wish to receive their own copy of all mailings.

There is an option on the form to join the Peer Support Register, and to subscribe to FaMily magazine, and opportunity to purchase other items.

Download the form below, or contact us for a copy in the post!

[download id="10"]

Peer Support Register

FMSupport's Peer Support Register is available to members only on an opt-in basis.

When applying for membership you will be asked if you want ot be included in the Peer Support Register (PSR), which effectively is just a publicly available members list.  You can also choose which details you want to have included in the Register, which is arranged by region.

Everyone on the Register will receive a copy of it, and it will be updated every 3-4 months.  You can then use the Register to contact others locally with fibromyalgia.

Membership

Membership is open to anyone affected by or concerned about fibromyalgia.  Although FMSupport is working predominantly in the South Essex area, our website and online services can obviously be accessed further afield,  and so membership is accepted from outside of the South Essex area accordingly.

Please note that signing up as a user of the site does not make you a member of FMSupport.

Members wil receive all our newsletters, be entitled to attend and vote at the AGM, be included in and receive the Peer Support Register (optional), have access to the members-only area of the website and receive other member-only benefits as made available.

Full personal members will normally be fibromyalgia sufferers themselves, or other concerned individuals.  Full personal membership costs £10pa, though there is a reduced rate of £5 for students and sufferers who are on benefits and unable to pay the full amount.

Carers and family members of a full personal member may also join FMSupport as full members, at the reduced rate of £5.

Supporter membership is free of charge to carers and family members not requiring their own copy of mailings and other member privileges.  Supporter members may also accompany their full personal member to any FMSupport events free of charge.

[download id="10"]

FMSupport in Thurrock Gazette

Submitted by admin on 4 May, 2008 - 23:12
  • press
  • publicity
  • news
  • publicity

The Thurrock Gazette will be including details in their paper this week, but have already added information online.  You can view their online write-up, and comment on it also if you wish, on the Thurrock Gazette website.

Finance

Submitted by admin on 3 May, 2008 - 11:04
  • finance

A number of people have asked about money and supporting us recently, so I thought I'd share some bits about finance...

Technically FMSupport is in debt right now - though as I've not yet claimed any expenses our accounts show a nil balance rather than a deficit :-)  It's been really ensouraging to have had so many people phone and email to share their story and ask for more information, and great that some people have offered to place posters  in their locality... but the costs of printing and postage are adding up!

We'll shortly be sending out membership forms.  Annual membership will be £10, and this will help to cover some of these costs and also any expenses that are incurred at future meetings (though there will probbaly be a nominal charge at meetings also), for example speaker's expenses, venue hire, refreshments.

We are wanting to get many more posters displayed throughout South Essex, and are considering having them properly printed.  Whilst we have some excellent, competitive quotes, we don't yet have the money to go ahead.  We'd also like to get some information leaflets produced... again, it all costs money.

Our website and phone services have been provided free of charge, and we also currently do not pay for any phone calls we make.  Steve and Helen give their time, experience and expertise for free, which helps keep costs down, and we do not have to pay for our insurance as it is covered by FMAUK.

The information packs cost about 50p each to put together and mail out.  At present we're getting 2-3 enquiries a week and sending out info as a result, though with the press campaign at present this will increase - we're sending out a dozen packs this weekend as a result of the radio interview.

The posters will cost about £100, and we've not got quotes yet for other materials we are trying to get produced.

If you want to make a donation to FMSupport you can send cheques to FMSupport, PO Box 1942, Stanford-le-Hope, SS17 0WU.  Alternatively you can make BACS payments directly to our account - number 01537570 - at LloydsTSB - sort-code 301834.

Fibro e-mail service

Submitted by admin on 2 May, 2008 - 22:34
  • email
  • google
  • news
  • services
  • tech

FMSupport have teamed up with PuzzledWorld (who provide our admin support, website and designs) and Google to provide email accounts using the domain fibro.me.uk to help get people talking about fibromyalgia - clever, huh?!

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